Well...here we are, a mere few hours away from the big day. I have to be at the hospital at 5am, yea that early. Apparently I can't be a normal person (although we should have learned that the day I was diagnosed with Chiari) but I also have Von Willebrands Disease, meaning my blood is missing some protein it needs to clot. So I am taking a journey to the hospital a wee bit early to attempt a transfusion of sorts, if this works the surgery will go as planned, if not ,well its back to the drawing board for me and my big brain.
I have been going through the motions the last few days getting everything ready, packing a bag, getting comfortable sweats to wear, cleaning up and doing laundry yet its just now hitting me. For the last however many years I have lived in pain, pain that never had the same face, it came and went as fast as it showed up. It would trick me and come at the most awful times. A year ago the answer to the question of why I was in pain was answered, and if a few hours I go to war. I am fighting this and I am going to win. The transfusion will work, the decompression will work, and this time next month I will be able to say that I have been waking up pain free.
A friend of mine told me that it would be here before I knew it, and I didn't believe her. Yet, here I am, almost in shock that it is here. I'm debating on going to sleep tonight, I have to be up at 3am....in a weird way, it feels like Christmas Eve. Like I will wake up in the morning and not be sure what is under the tree until I get down there. I'm not sure what tomorrow will hold, until I get there.
So does that mean Dr. Beijanni is like Santa Claus?? Cause if that is the case, I kinda wish I'd get a puppy or something instead of a few days at the hospital and a plate in my head. hmm...I changed my mind, I don't like the Christmas analogy.
So here is to hoping that my blood isn't thin and everything goes smoothly! I will try to update as soon as I can, I'm not sure how that will work. I will have pictures and the play by play, as much as I can remember that is. I'm going to ask Ryan to write things down for me, I'm sure I won't remember.
I guess I am signing off for now....take that Big Brain and Thin Blood...I OWN YOU!!!